Being an Orange County Child Photographer, on occasion there are opportunities for me to connect with my community and “give” to some causes that are meaningful to me. The month of February is dedicated to raising awareness of Congenital Heart Defects in children. To participate, I am providing some complimentary portrait sessions to families in Orange County with a child who suffers from a CHD and posting pictures of the sessions with the tags #paperheartproject, #CHDawareness and #hearthero. Here is Paul and his family’s story. They are warriors and they are heroes with strength I can’t even fathom.
Paul John Schubert JR was born on September 28, 2012 with a severe congenital heart defect called HLHS, essentially he has 1/2 his heart with the entire Left ventricle being non-functioning. We were told about comfort care. We were told he had maybe a 30% chance at survival. We pushed through not knowing the outcome, not knowing if we were making the right choices at the time. Lots of two steps forward, three steps back. Lots of tears and prayers and lots of hospital beeping and wires. Lots of day’s as parents we looked like zombies (before zombies were cool). All the while he crept into doctors and nurses hearts who started rooting for him instead of not wanting to look us in the eye because they never thought he would make it through the day. They couldn’t help but get attached and fall in love because he was “Schubie”. He was the doctors “Boyfriend”. He spent the first 8 months of his life in CHOC (Children’s Hospital of Orange County) while mommy and daddy juggled his twin brother Luke at home. Paul has had 7 cardiac catheterizations, 2 open heart surgeries with a 3rd planned for April 2017 a g-tube surgery and too many EKG’s, Echocardiograms, dosages of medications and doctors visits to even count! He is seriously one of the toughest kids I’ve ever met. He is my hero. He’s a pretty tough nut to crack only in front of a camera otherwise he’s a serious nut! I don’t understand the “why’s or how’s” of CHD and I thought I’d spend my time as a mom teaching my kids about the world around them, instead I teach the world about my child’s heart condition…& spread his story because each time I do someone else can learn about how he is 1 in 100. -Love Twin Heart Momma (Amber Schubert) & Daddy Paul Schubert and Twin bro bro Luke
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KC Crow, photographer and owner of Crow’s Nest Photography specializing in Fine Art Newborn and Baby photography in Brea, California….serving all of North Orange County including Brea, Placentia, Yorba Linda, Anaheim Hills, Villa Park, Fullerton, Irvine, Tustin, Orange, La Habra, Huntington Beach, Newport Beach, Costa Mesa, Buena Park. Also serving South Orange County and parts of Los Angeles County and Inland Empire.